Rare diseases are not as rare as many people think: 400 million people around the world live with one of the approximately 7,000 rare diseases. On average, they wait 4.8 years for the correct diagnosis, and then learn that there is no approved treatment for more than 90 percent of known rare diseases.
On February 29, the Rare Disease Day (RDD), we want to raise awareness and visibility for all people with rare diseases and their families with "colourUp4RARE". We invite everyone to colour in our digital zebra herd – a symbol for rare diseases – and to share their colours for those affected.
The Rare Disease Day (RDD) is an international day of action to raise awareness for people with rare diseases. It was initiated in 2008 by EURORDIS – Rare Disease Europe the European alliance of national patient organizations.
The Rare Disease Day always takes place on the last day of February, which is the "rarest" day of the year every four years.
"When you hear hoof tremors, think of horses, not zebras," is a widely cited medical teaching that was coined in the 1940s by Dr Theodore E. Woodward, Maryland University in Baltimore, USA. The aim is to make it clear that common diseases are more likely than rare ones, even if the symptoms of a patient fit both.
Over 70 years later, the zebra has become an international symbol for rare diseases, and because rare diseases are not that rare - after all, around 400 million people around the world are affected – on Rare Disease Day we are turning the theorem around and putting the spotlight on them with "colourUp4RARE" and our zebra colour-up challenge.
Download, print and pinDownload now
Download, colour in, and send to a friend.Download now
Download and share.Download now
We have developed a filter that can be downloaded to your mobile phone. Take a photo, add the hashtags #colourUp4RARE #RareDiseaseDay #ShareYourColours and post it.Facebook filter Instagram filter
With colourUp4RARE, the participating companies want to support the activities of the Rare Disease Day which was initiated in 2008 by EURORDIS – Rare Disease Europe and to pay more attention to people living with a rare disease. At the same time, awareness for improved framework conditions for research and development of new diagnosis and treatment options and for optimised care should be raised. So that people with a rare disease can enjoy an improved quality of life.
The Ravensburger's CreArt brand, known for many years as "painting by numbers", was the inspiration for the colourUp4RARE initiative.